• Overview
• Inheritance
• Symptoms
  • Growth, Bones and Joints
  • Brain and Nerves
  • Physical Appearance
  • Ear, Nose, Throat and Chest
  • Heart
  • Liver, Spleen and Abdomen
  • Eyes
• Testing
• Treatment
• Resources
• Aldurazyme Update

Ear, Nose, Throat and Chest

The National MPS Society
The Society provides support services, including conferences, written information, a members' directory, and a newsletter, to people with MPS diseases (including Hurler syndrome) and their families. The Society also funds fellowships and research studies related to MPS diseases.

The Canadian MPS Society
The Society provides support services, including conferences, written information, a quarterly newsletter, and an on-line message board, to people with MPS diseases (including Hurler syndrome) and their families. The Society also funds MPS-related research.

The National Tay-Sachs and Allied Diseases Association (NTSAD)
NTSAD administers a program called the Parent Peer Group, a support group of about 400 families with Hurler syndrome and related diseases. The NTSAD also maintains a resource list of health care workers, therapists, and other professionals familiar with these diseases.

UCSF's Pediatric Bone Marrow Transplant Program
A team of specialists performs bone marrow transplants for pediatric patients at UCSF. Patients with Hurler syndrome who are candidates for bone marrow transplantation are referred to the Program for discussion and transplant-related care.